Conclusion from a recent article by Heather A. Piwowar, Michael J. Becich, Howard Bilofsky, Rebecca S. Crowley
"We recognize that there are real and perceived impediments to sharing biomedical research data. Some individual donors may have personal interests in privacy and confidentiality that exceed their desire to contribute to new methods of detecting and treating disease. Investigators may restrict access to data to maximize their professional and economic benefit. Academic health centers may view data sharing as a threat to intellectual property, possibly impeding entrepreneurial spin-offs and technology transfers that bring revenue and act as incubators for future research. AHCs may also worry that the data could be used to critique their health care practices rather than advance the research frontier. Industrial sponsorship can hinder plans for sharing data, and the regulatory environment may necessitate stringent oversight to ensure compliance and minimize risk.
These issues can and must be addressed as we work to embrace a data sharing culture. The hurdles may not be as high as we think: 99% of senior technology transfer officers at highly funded NIH universities agree that academic scientists should freely share data with other academic scientists after publication [41]. The systems and architectures in Table 1 provide a future vision of research in which data are more universally available and interoperable. Recent initiatives for making research publications freely available [42–45] demonstrate a political and academic commitment “to help advance science and improve human health” [46] by widely sharing research results." via SC Blog